“Parenting Critically Ill Children”
John 4:43-54
What would cause a royal official of the court to swallow his pride and walk 20 miles to seek the help of a village carpenter? The answer: he was the father of a critically ill child and nothing would keep him from doing the improbable and attempting the impossible to get help for his son. Not only did he put aside his pride, he refused to be discouraged, portrayed incredible faith, and he totally surrendered to Jesus the Messiah. It wasn’t something he did for a moment, but when he got home his entire household believed in Jesus. The laughter and ridicule he would receive from the town would be embarrassing, but he believed anyway.
One of the most challenging AND rewarding things we do at GospeLines Ministries is pray for the parents of critically ill children. As prayer warriors beseech the throne of God for the sick child we find ourselves bonding with the entire family. We have met a family only once but the closeness we feel to all is real. The ministry process is humbling and often heartbreaking. In some cases we are linked with a family for many years, battling cancer, heart defects, and many other illnesses which render all of us helpless. We have learned too often that healing does not always come in every situation.
This week one of our children, little Ellie, earned her angel wings at eight years of age. What we have learned from this struggle has inspired me to share some of it with you today. It’s a long story which began on July 4, 2008; you may need a little time and more than a few tissues to read it. These are the words of Ellie’s Mom:
Friday, July 4, 2008 6:48 PM, EDT
My Cherished Family, Friends, and to all the Believers of Miracles and Prayers:
Today is Friday July 4th 2008. As you watch the fireworks light up the sky tonight, please think of the beauty of Gods Blessings to enjoy this special time with your friends and family. Truly celebrate more than Independence day - but your days on earth to feel love, give love and make a difference through the small acts of kindness that can change a life forever. Let my story be a reminder of how to cherish your family everyday and to never forget today is a blessing and tomorrow has no promises. But if we live fully today with full heart and joy and remember to be thankful of our blessings then we will live more than most people do in an entire lifetime.
My 6 year old daughter Ellie (a twin) has stage 4 Rhabdomyosarcoma cancer in her trunk, leg and lungs. I found a hard lump in her lower pelvis only 2 nights ago while powdering her sweet body before bedtime. At 10 p.m. we rushed her to ER and by 2am our lives had changed forever with the news that my beautiful first born had cancer.
At 10:00pm tonight I ask all those who can to simply bow your head in prayer and may the power of our voices in unison allow God to hear my prayer as a Mother. My prayer to you is this...
"Dear God, You have blessed me and (my husband) with a daughter that we call Ellie. We understand Ellie is only on loan to us on this heavenly earth and when you want her back you have the right to take her into the heavens and hold her in your arms. I am so thankful to you for allowing me to give birth to my two strong and healthy babies on October 31, 2001. This was truly the most joyful day of my life - the gift of motherhood. For I understand some are not even as blessed as myself to know this feeling of joy through your child. Her smile alone and the sparkle in her eyes, the soft sweet voice calling Mommy has filled me in a way that I cannot explain - and I have you God to Thank.
I can understand why you would want her with you - she is special and very kind, patient and trusting. As she says to me "Mommy I specialize in being kind." What child says that? Only a child that you would create. I pray that you hear me now. Lord, My Heavenly Father, please send Ellie the miracle of healing and allow her to share her beauty, kindness and love with others on your earth. Ellie is needed here on earth more than with you. Ellie's work is not done here; she needs to be here with us to spread your joy and to act as proof of your power. I am here by her side to and will walk through the pain and fears she will be faced with - but I will be strong for her and for you.
I ask that you give my family the strength to feel the power of your presence and calm our aching hearts. For I am angry, I am scared, I am devastated and at times I am numb.
But with your ability to wrap your arms around my family and to care for us as we care for Ellie we can together heal our earthly and heavenly daughter Ellie Potvin. I beg of you. I thank you for sending me so many people into my life to show Ellie how much they love her and hold my family up when all we want to do is fall to the ground and beat our fists. Please know I do not ask why me... I already know that answer. It is called life. I want to ask why Ellie? But I have let that go. But I do ask for a miracle that only you can do. For Ellie is meant to be with my family on this earth to share your joy with others. In your name and your name only I praise you and ask you for this miracle. Our lives are forever changed by this experience and we give it you. But beg for the miracles you are known for giving, should this be your decision. Amen."
Now we fast-forward to Wednesday morning of this week. Ellie’s mom writes:
Wednesday, June 23, 2010 1:08 AM, EDT
Ellie is barely with us in body... All is failing. She can barely speak, Sleeping in and out.
She woke to see my tears and did the most incredible Ellie thing... She made us laugh and smile.
God knows how she slowly managed to kiss her biceps and say "don't worry I am strong Mommy. A fighter."
Ellie's spirit is life... Her body is failing her but her will to live is why she is here. At a time like this our Ellie comforts me.
Breathing is slowing down; can no longer sip through a straw... Angels I pray she will hear call her name.
As much as I love her... Stop this fight. Ellie has won the prize. Heaven.
Wednesday, June 23, 2010 4:21 AM, EDT
Enough God... Ellie's body has been tormented...I have been prepared to let go... Please God! Let her soul be free
Ellie still fighting...
Wednesday, June 23, 2010 6:28 AM, EDT
Ellie is still breathing... She is ever so slowly leaving us. This is breaking me to shreds, I have been ripped apart, this has tested my faith, to watch your child die before your eyes - is too much for a mother - just too much.
God I pray... Please let her fly.
Wednesday, June 23, 2010 11:42 AM, EDT
Ellie gained her angel wings at 11:35am and rests in my arms.
Wednesday, June 23, 2010 3:04 PM, EDT
Ellie has been carried in my arms to the funeral home. She looks like a porcelain doll in her pink dress.
Parents who go through these kinds of situations are special. They gain strength from desperation, and faith from hopelessness. They learn to stand tall just after they have been knocked down by a doctor’s report. Somehow they get by, and we are better for knowing these godly people. They teach us humility, courage, faith and total surrender; they are our mentors in suffering and parenting. Let us honor them with our sincere prayers. Amen and amen!
Tommy Harrison
|